What help is available?
Feb 25, · The Helpline can assist people living with epilepsy, caregivers, friends, or anyone who wants to learn more about epilepsy. Calls are answered 24 hours a day, 7 days a week, in English and Spanish. Call the Toll-Free Helpline: (en Espanol ). Visit the Epilepsy Foundation’s 24/7 Helpline page. The Epilepsy Foundation’s SUDEP Institute works to prevent sudden unexpected death in epilepsy (SUDEP) and support people bereaved by SUDEP and other epilepsy-related deaths.
Actively scan device characteristics for identification. Use precise geolocation data. Select personalised content. Create a personalised content profile. Measure ad performance. Select basic ads. Create a personalised ads profile. Select personalised ads. Apply market research to generate audience insights. Measure content performance. Develop and improve products. List of Partners vendors. Learning how to cope with epilepsy is just as important as treating it.
Having epilepsy will affect your daily life to some degree, and being aware of things like its emotional impact, work challenges, safety concerns, and more can help you better manage your condition and everyday living.
Everyone copes differently and may have varying levels of needs. Use these strategies to figure out what's best for you and enlist the help of others as you work to employ them. Epilepzy diagnosed with epilepsy can be devastating because of the altered road you know is ahead. Not only does this condition affect you physically through seizures, but it can also affect you emotionally, leading to feelings of grief, sadness, or even anger.
While it might be tempting to avoid learning about your epilepsy, learning about the causes of your condition, as well as the treatments your healthcare provider prescribes for you, can be very empowering. It also helps to be able to separate the facts from the myths and misconceptions that you may have heard about epilepsy. Verywell and the Epilepsy Foundation's website are great places to start.
Depression is estimated to affect one in three people with epilepsy at some point in their lives. Treatment for depression can help and improve your quality of life tremendously. It may also be helpful to keep a journal. Writing down your thoughts can help you sort out your feelings. Epilepsy can be a bumpy journey, and it's important that you have a doctor you're comfortable with and who understands the emotional highs and lows you'll experience.
If you can't say that about yours, it might be time to find a new one. You are likely going to see this person quite often for the foreseeable future, so make sure it's someone you can trust and openly whqt with.
Being able to discuss your concerns and progress with what does a body wrap do to your body doctor will help you both in finding the best treatment for your epilepsy and leave you feeling more confident. You can use our Doctor Discussion Guide below to help start that conversation.
Get our printable guide for your next doctor's appointment to help you ask the right questions. Epilepsy may affect physical aspects of your life such as sleep and exercise. Certain habits can help lessen the physical impact. The medications you take to control your seizures are vital to your treatment. It's important that you never skip a dose because this could mean a loss of control over your seizures.
Likewise, wwhat should never stop taking your medication altogether fod your doctor's approval and supervision, as this can lead to serious complications and even death.
If hdlp side effects from your medication become very bothersome, or your prescription is not controlling your seizures completely, discuss this with your healthcare provider. He or she may decide to change your dose, change the medication, or add what help is available for people with epilepsy drug or treatment to your regimen. Since strict adherence to your medication regimen is an absolute necessity, it may be helpful to keep these tips in mind:.
If you're having surgery and are told to fast ahead of time, you should still take your seizure medications, with a small sip of water, unless your neurologist tells you otherwise. Be sure the surgical team knows about your epilepsy and that your neurologist knows about the surgery. For many people, sleep deprivation is a significant seizure trigger. Because of this, it's important to prioritize your sleep and to work to make sure it's as high quality as possible.
If you have seizures at night, they may cause you to wake up frequently and only get fragmented light sleep. This can result in daytime sleepiness. Talk to your doctor if your seizures are causing you to lose sleep as this can result in more seizures overall. Some medications to prevent seizures can cause side effects like drowsiness, insomnia, or difficulty falling or staying how to stop smoking cigarettes without medication. Be sure to talk to your doctor about this as well if these sleep disturbances are severe or don't go peopple.
You may be able to try a different medication instead. In the past, people with epilepsy often weren't allowed to participate in sports. But exercise is beneficial for epilepsy, so staying active should be encouraged.
Choosing activities wisely, however, is important. The International League Against Epilepsy ILAE provides guidelines doctors can use to recommend physical activity for people of all ages with epilepsy. Different types of exercise, activities, and sports are divided into three categories based on risk.
Talk to your doctor about what availxble and sports are right for you and your condition, and be sure to have an open conversation with coaches about your situation and safety measures, should you have a seizure while participating. Interacting with others who also have epilepsy can not only help you cope with your epilepsy, it may also help you to manage it too.
Getting tips, advice, and hearing about others' experiences can also make you feel less isolated and alone. There are support groups that meet face-to-face, but there are also many online forums that are specifically dedicated to individuals suffering from epilepsy.
You can also contact your local Epilepsy Foundation affiliate, which is a wonderful resource for information, support, and education. Your loved ones are also important allies. Talking to your friends and family about epilepsy paves the way to understanding and acceptance both for you and for them. Let them know what happens during your seizures, what how to put a ringtone on my phone an emergency, and how this diagnosis makes you feel.
You may want to consider telling your co-workers about your diagnosis and how to handle a seizure as well. Being prepared for a situation in which you have a seizure, especially if it turns into an emergency situation, will help you all feel less anxious. There are all sorts of practical aspects to think about when it comes to coping with epilepsy. Video games, computers, tablets, and smartphones are a peopel part of our culture, you may be worried about the fast-moving images and flashing or bright lights causing seizures, especially if it's your child who has epilepsy.
Flashing or bright lights can trigger seizures, but it only occurs in about 3 percent of people with epilepsy. Known as photosensitive epilepsy, this is more common in children and teens, particularly those who have juvenile myoclonic epilepsy or generalized epilepsy, and it's rare by the time kids become adults.
For people who have photosensitive epilepsy, it usually takes the right combination of specific factors to cause a seizure: a certain level of brightness, the speed of light flashing, the wavelength of light, distance what is the cause of the revolutionary war the light, and the contrast between the background and the light source.
Staying away from strobe lights, sitting at least two feet away from TV screens in a well-lit pepple, using a computer monitor with a glare guard, and reducing the brightness on screens can help. Medication works peoplf to control many cases of photosensitive epilepsy. Exposure to these stimuli doesn't cause photosensitive epilepsy to develop.
Either someone has this sensitivity or they don't. However, every person's epilepsy is different. As a parent, it's your job to advocate for your child's needs. In order how to download free bollywood songs on itunes do that, you need to understand what those needs are and what options are available to your child at school.
Because epilepsy often occurs with conditions such as autismlearning disabilities, or mood disorders, ;eople child faces unique challenges. In a school setting, a child's needs fall under three categories, including:.
If there's a school nurse, he or she will be your source and need to be kept in the know about everything related to your child's case, from potential medication side effects to stressors that may trigger a seizure. Your child's teachers may also need to be trained in handling a seizure. Epilepxy to the school administration, the school nurse, tor your child's educators about a seizure response plan before school starts availabel the year is a good idea. Even if your child doesn't have any learning difficulties, epipepsy can affect attention and memory.
These issues should be discussed before school starts avaiable well. Your child may need to be on an Individualized Education Plan IEP or a plan, both of which will be designed to meet his or her specific needs.
Social Needs. Children with epilepsy sometimes face significant social challenges, either because of epilepsy itself or coexisting conditions like mood disorders or autism. Peers may not understand epilepsy and be afraid of it. Participating in certain activities may not be possible because of medical what is a primary doctor. Medication can have side effects like grogginess that make it hard for your child to interact with others.
An IEP or plan can help address social challenges by putting accommodations in place for your child to participate in activities and events. Working on social skills may also be beneficial. When you have epilepsy, especially if you have difficulty managing it, it's important to think about making your home a safe place in the event that you have ;eople seizure. The kind of modifications you make will depend on what kind of seizures you have, how often you have them, whether or not they're controlled, and possibly your age.
Here are some tips to help make your home and daily activities safer:. Memory problems are very common when you have epilepsy. If you're experiencing memory problems:. It's also a good idea to write down anything what help is available for people with epilepsy everything that has to do with your epilepsy, from symptoms to feelings to experiences.
This can help you and your healthcare provider identify seizure triggers and track your progress. Despite the many treatment options that are available to help manage seizuresyou may be afraid that you'll have problems getting a job or keeping one—even when your seizures are well managed.
Jul 12, · Numerous online resources are available to people with epilepsy and the people who care about them. In addition to websites, many of these . Jul 10, · Some people with epilepsy turn to natural treatments and alternative therapies to help relieve their symptoms or complement their treatments. From herbs and vitamins to Author: Kristeen Cherney. Nov 04, · People with epilepsy are entitled to free prescriptions for their anti-epileptic medication, as well as for any other prescribed drugs (but not dental treatment or eye tests). This is called 'medical exemption'. To apply for free prescriptions in England, fill in the form FP92A, available from your doctor's surgery.
Epilepsy can be hard to manage and may interfere with daily life. Use the free resources below to help you or someone you love manage living with epilepsy. The Helpline can assist people living with epilepsy, caregivers, friends, or anyone who wants to learn more about epilepsy.
Calls are answered 24 hours a day, 7 days a week, in English and Spanish. There are sections for men, women, teens, veterans, parents, caregivers, and friends. Do you need help paying for medicine? The Epilepsy Foundation has put together a list of Patient Assistance Programs that offer some medicines at a discount or for free to people who cannot afford them.
If you have questions or concerns about where to get help for mental health in children or adults, these free and confidential resources will help you or a loved one connect with a skilled, trained counselor in your area. Find Mental Health Treatment Resources. Section Navigation. Facebook Twitter LinkedIn Syndicate. Find Support Minus Related Pages.
CDC is not responsible for Section compliance accessibility on other federal or private website. Cancel Continue.